Julie Park

Haemophilia in Aotearoa New Zealand

More Than A Bleeding Nuisance

Ebook (PDF Format)

Haemophilia in Aotearoa New Zealand provides a richly detailed analysis of the experience of the bleeding disorder of haemophilia based on longterm ethnographic research. The chapters consider experiences of diagnosis; how parents, children, and adults care and integrate medical routines into family life; the creation of a gendered haemophilia; the use and ethical dilemmas of new technologies for treatment, testing and reproduction; and how individuals and the haemophilia community experienced the infected blood tragedy and its aftermath, which included extended and ultimately successful political struggles with the neoliberalising state. The… Mehr

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Produktdetails

Weitere Autoren: Scott, Kathryn / York, Deon / Carnahan, Michael

ISBN: 978-0-429-65171-7
EAN: 9780429651717
Produktnummer: 29873083
Verlag: Taylor & Francis Ltd.
Sprache: Englisch
Erscheinungsjahr: 2019
Seitenangabe: 238 S.
Plattform: PDF
Masse: 3'431 KB
Auflage: 1. Auflage
Abbildungen: 2 schwarz-weiße Tabellen

Über den Autor

Julie Park is Professor Emerita of Anthropology at the University of Auckland, New Zealand.Kathryn M. Scott works in social research and advocacy. She is an Honorary Research Fellow in Anthropology at the University of Auckland, New Zealand.Deon York works in the health sector. He is currently President of the Haemophilia Foundation of New Zealand (HFNZ) and on the Board of Directors of the World Federation of Hemophilia (WFH).Michael Carnahan has worked in health services management and is former President of the Haemophilia Foundation of New Zealand (HFNZ).